Intellectual and Developmental Disabilities
The Arc of North Carolina
Phone: (919) 782-4632 or 1-800-662-8706
Fax: (919) 782-4634
Email: info@arcnc.org
Address: 343 East Six Forks Rd., Suite 320
Raleigh, NC 27609
Description of Services: The Arc of North Carolina is committed to securing for all people with intellectual and developmental disabilities the opportunity to choose and realize their goals of where and how they learn, live, work, and play. The Arc of North Carolina is an affiliated chapter of The Arc of the United States.
Service Area: State
Website: http://www.arcnc.org/
Phone: (919) 782-4632 or 1-800-662-8706
Fax: (919) 782-4634
Email: info@arcnc.org
Address: 343 East Six Forks Rd., Suite 320
Raleigh, NC 27609
Description of Services: The Arc of North Carolina is committed to securing for all people with intellectual and developmental disabilities the opportunity to choose and realize their goals of where and how they learn, live, work, and play. The Arc of North Carolina is an affiliated chapter of The Arc of the United States.
Service Area: State
Website: http://www.arcnc.org/
Meet the Need NC
Phone:
Address: 2920 Forestville Rd Ste: 100 #3087
Raleigh, NC 27616
Email: hello@meettheneedNC.org
Description: Meet the Need NC is an initiative, funded by the North Carolina Council on Developmental Disabilities, that is changing the intellectual and other developmental disabilities (I/DD) landscape across the state. The initiative recognizes systemic change for I/DD community services and supports requires a common agenda.
Meet the Need NC is driven by the Leadership Alliance for Neurodevelopmental Disabilities (LAND), a program of the 501c3 nonprofit, Mental Health Transformation Alliance (MHTA). LAND is an advocacy organization made up of family members with I/DD “lived experience” and other professionals dedicated to improve the lives of those with I/DD and their families.
Many individuals with intellectual and/or other developmental disabilities (I/DD) who qualify are waiting for funding from the North Carolina State Legislature to become available. They are placed on a Waiting List. The list is also called the Registry of Unmet Needs (RUN), sometimes referred to as the “Registry”.
Others who qualify for services are not receiving them because of a workforce shortage. There are too few Direct Support Professionals (DSPs) due, in part, to low hourly wages. This is a crisis.
Currently, there are approximately 15,000 people on the Registry of Unmet Needs in North Carolina. People on waitlists for Medicaid Waivers in other states in the U.S. have an average wait time of over two years. In North Carolina, the wait can be up to 12 years or more.
Website: https://meettheneednc.org/
Phone:
Address: 2920 Forestville Rd Ste: 100 #3087
Raleigh, NC 27616
Email: hello@meettheneedNC.org
Description: Meet the Need NC is an initiative, funded by the North Carolina Council on Developmental Disabilities, that is changing the intellectual and other developmental disabilities (I/DD) landscape across the state. The initiative recognizes systemic change for I/DD community services and supports requires a common agenda.
Meet the Need NC is driven by the Leadership Alliance for Neurodevelopmental Disabilities (LAND), a program of the 501c3 nonprofit, Mental Health Transformation Alliance (MHTA). LAND is an advocacy organization made up of family members with I/DD “lived experience” and other professionals dedicated to improve the lives of those with I/DD and their families.
Many individuals with intellectual and/or other developmental disabilities (I/DD) who qualify are waiting for funding from the North Carolina State Legislature to become available. They are placed on a Waiting List. The list is also called the Registry of Unmet Needs (RUN), sometimes referred to as the “Registry”.
Others who qualify for services are not receiving them because of a workforce shortage. There are too few Direct Support Professionals (DSPs) due, in part, to low hourly wages. This is a crisis.
Currently, there are approximately 15,000 people on the Registry of Unmet Needs in North Carolina. People on waitlists for Medicaid Waivers in other states in the U.S. have an average wait time of over two years. In North Carolina, the wait can be up to 12 years or more.
Website: https://meettheneednc.org/
Disability Rights North Carolina (DRNC)
Phone: 919-856-2195Toll Free (within NC): 1-877-235-4210
TTY: 1-888-268-5535
Address: 33724 National Drive, Suite 100
Raleigh, NC 27612724 National Drive, Suite 100
Raleigh, NC 27612
Hours: 8:00 a.m. – 5:00 p.m. Monday through Friday.
Description: Disability Rights North Carolina (DRNC) is the federally designated protection and advocacy agency for the State of North Carolina.As the protection and advocacy agency, DRNC defends the civil and legal rights of people with disabilities. Our advocacy work focuses on the issues and problems that impact you the most. We work to advance your legal rights. We advocate to get you the supports you need to live meaningful lives in your community. We want you to make your own choices. We work for equal opportunity.
Learn more about the disability rights issues that we work on. Get helpful information about subjects like education, housing and employment so you can advocate for yourself. See some examples of some of our work, find links to resources, and meet our legal teams.
Report abuse or neglect: To report abuse or neglect, apply for legal help, or for all other questions please call 919-856-2195
Website: disabilityrightsnc.org/
Phone: 919-856-2195Toll Free (within NC): 1-877-235-4210
TTY: 1-888-268-5535
Address: 33724 National Drive, Suite 100
Raleigh, NC 27612724 National Drive, Suite 100
Raleigh, NC 27612
Hours: 8:00 a.m. – 5:00 p.m. Monday through Friday.
Description: Disability Rights North Carolina (DRNC) is the federally designated protection and advocacy agency for the State of North Carolina.As the protection and advocacy agency, DRNC defends the civil and legal rights of people with disabilities. Our advocacy work focuses on the issues and problems that impact you the most. We work to advance your legal rights. We advocate to get you the supports you need to live meaningful lives in your community. We want you to make your own choices. We work for equal opportunity.
Learn more about the disability rights issues that we work on. Get helpful information about subjects like education, housing and employment so you can advocate for yourself. See some examples of some of our work, find links to resources, and meet our legal teams.
Report abuse or neglect: To report abuse or neglect, apply for legal help, or for all other questions please call 919-856-2195
Website: disabilityrightsnc.org/
The North Carolina Council on Developmental Disabilities (NCCDD)
Phone: 1-(984) 920-8200
Address: 3109 Poplarwood Court, Suite 105 Raleigh, NC 27604
Description: The North Carolina Council on Developmental Disabilities (NCCDD) advocates for almost 200,000 North Carolinians with intellectual and other developmental disabilities and their families. Every state and territory in the US has a Council on DD, and there are a total of 56 Councils. The NCCDD does not provide direct services. The Council is federally mandated and receives federal funds through the Developmental Disabilities and Bill of Rights Act (or DD Act) to promote self determination, integration, productivity, inclusion and independence. The country’s Councils on Developmental Disabilities were created in 1970 through the Developmental Disabilities Assistance and Bill of Rights Act (DD Act) to "engage in advocacy, capacity building, and systemic change activities” that “contribute to a coordinated, consumer and family-centered, comprehensive system of community services and individualized supports.” The NCCDD works collaboratively, across the state, to “assure that people with intellectual and other developmental disabilities (I/DD) and their families participate in the design of and have access to needed community services and individualized supports.”
Website: https://nccdd.org/
Phone: 1-(984) 920-8200
Address: 3109 Poplarwood Court, Suite 105 Raleigh, NC 27604
Description: The North Carolina Council on Developmental Disabilities (NCCDD) advocates for almost 200,000 North Carolinians with intellectual and other developmental disabilities and their families. Every state and territory in the US has a Council on DD, and there are a total of 56 Councils. The NCCDD does not provide direct services. The Council is federally mandated and receives federal funds through the Developmental Disabilities and Bill of Rights Act (or DD Act) to promote self determination, integration, productivity, inclusion and independence. The country’s Councils on Developmental Disabilities were created in 1970 through the Developmental Disabilities Assistance and Bill of Rights Act (DD Act) to "engage in advocacy, capacity building, and systemic change activities” that “contribute to a coordinated, consumer and family-centered, comprehensive system of community services and individualized supports.” The NCCDD works collaboratively, across the state, to “assure that people with intellectual and other developmental disabilities (I/DD) and their families participate in the design of and have access to needed community services and individualized supports.”
Website: https://nccdd.org/
School Forms: IEPs and 504s
IEP: "A plan or program developed to ensure that a child who has a disability identified under the law and is attending an elementary or secondary educational institution receives specialized instruction and related services." - University of Washington
504: " A plan developed to ensure that a child who has a disability identified under the law and is attending an elementary or secondary educational institution receives accommodations that will ensure their academic success and access to the learning environment." - University of Washington
The webpage below also has forms for determining a child's eligibility for such plans.
Click here to access school forms.
IEP: "A plan or program developed to ensure that a child who has a disability identified under the law and is attending an elementary or secondary educational institution receives specialized instruction and related services." - University of Washington
504: " A plan developed to ensure that a child who has a disability identified under the law and is attending an elementary or secondary educational institution receives accommodations that will ensure their academic success and access to the learning environment." - University of Washington
The webpage below also has forms for determining a child's eligibility for such plans.
Click here to access school forms.